So, now Deacon has had 6 surgeries. Dont worry, no more surgery since last post. BUT, We got home last time on the Wed and on the Friday we all (15 of us) took the Rocky Mountineer train up to Whistler. It was a family gift from my parents! We loved it! The boys had a blast, and it was a much needed rest. Little did we know how soon I would need more rest.
We went up there and that night we went out to eat at a very nice fancy restaurant with all 6 babies under 3! LOL! They were very well behaved. Everythign was going well, until 3/4 of the way through, Deacon started to whimper again. I thought, OH NO! Are we going to have to get an ambulance up to Whistler?? So I sat him on my lap and just held him. About 5 min later, I heard a plopping noise, I looked down and poo was POURING out the back of his diaper OVERFLOWING all over the floor, his pants, my pants... So Joe and I took him and gingerly ran him to the bathroom and cleaned him up. After that he was fine. I just thought maybe it was gas or something. The next morning, he was running around our hotel room and tripped and put his 2 front teeth through his bottom lip.
Gesh I know.
So we got home fine and everything continued as normal. Until that next friday. In the middle of the night I woke up to him screaming, I ran in there and there was throw up everywhere! So I called 911, and we got raced to Ridge Meadows. We got there, xrays done, and the DR there told me he was constipated. That on the xray was a huge lump in his bowels. I was like... Ya, no. He said its fine, he will pass it fine. We went home. He didnt poo all day and he started the whimpering that night, so I sent my hubby Joe (who has never taken Deacon to the hospital) to get the DR to give him an enima. He went there and the dr there said nope, nothing on the xray from last night, just go home. Or you can DRIVE him to CHILDRENS!
I WAS SOOOO ANGRY!!!
So Joe drove him home, and I drove him into Vancouver. Turns out it WAS entercolitis this time. ARG! So bowel rest for 4 days and then slowly giving him food again. Its sooo heart breaking, refusing your child food. All while you have to eat in the bathroom. :)
Im just so glad that my mom was there to help me.
So now the GI says I need to keep him on the Gentamiacin and he gave me stronger steriods for his bum to clear. Hopefully this will be it for awhile.
After a month Deacon has gained 8 lbs!! He is now 2 years old and 28lbs!! He has begun to speak alot more and hes getting better and better. :)
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Aw Megan, this has been a long road for your family! Our thoughts and prayers are with you. Looking forward to a little visit tomorrow.
ReplyDeleteMegan, my son was born with HD. I don't know your story or where you have been having surgeries. I can very enthusiastically reccommend cincinatti childrens hospital. The center is the world's only one focused on the comprehensive and multidisciplinary care of children with colorectal problems.
ReplyDeletehttp://www.cincinnatichildrens.org/svc/alpha/c/colorectal/default.htm?WT.mc_id=100200&campaign=Colorectal&utm_content=colorectal&utm_source=Shortcut&utm_medium=Web-Print
God Bless
email with any questions
joeweissjr@hotmail.com
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